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Jun 3 - Two Years Old
Jun 3rd - Kyle turned two today! Where did time go? I can't believe this little guy is two already! As happy and excited as I was, I couldn't help but remember what happened two years ago, almost hour...
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Jul 17 - EEG
Jul 17th - Kyle has been making great progress in his mobility. He is now cruising along furniture with ease, transitioning among multiple surfaces (i.e. going from the couch to the band toy, back to...
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Aug 8 - Overnight EEG, Botox Injections, Dental Work
Aug 8th - Kyle had two doctor's appointments last Thursday. First he saw Dr. Lubicky, the orthopedic surgeon. He recommended Botox injections for his legs to help relax the tightness in his hamstrings....
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Sep 30 - Great Motor Progress but Struggling with Feeding Again
Sep 30th - Kyle has made great progress in his motor skills in the past two months. Three weeks after his Botox injections, he was able to walk by holding just one hand. He is now able to stand...
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Oct 17 - Bye-bye Topamax
Oct 17 - I cried as I gave Kyle his last dose of Topamax tonight. Two years and three months after we started him on Topamax he is now completely off of it. Tons of emotions rushed through my mind as I...
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Jun 13 - Three Year Update
June 13th, 2018 - Kyle turned three a little over a week ago! It was a quiet home celebration but nevertheless we were excited about all the progress he's made. A lot has happened since the last...
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July 12 - SDR surgery at St. Louis Children’s Hospital
July 12th - we arrived at St. Louis Tuesday evening for Kyle’s SDR surgery today. We left home Monday morning and spent the night in Dayton, OH. We also got to meet Teddy and his family in Dayton....
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Sep 14 - Look at me! I can walk!!
Sep 14th - We started outpatient physical therapy four times a week right after we got back from St. Louis in July. We also do daily stretches (once in the morning and once in the evening) and multiple...
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